Lisa
Calderwood, MA
Senior
Medical Writer
Wikipedia? YouTube? Facebook?
LinkedIn? Twitter? WebMD? How can patients navigate the crowded blogosphere of
medical information, health tips, community forums, or “med ed” videos to find
the most accurate resources? The truth is that they simply can’t be sure
they’re getting the most reliable information.
Consider a couple of recent studies
looking at accuracy in online health-related sources:
- In a study by the Cambridge
Health Alliance (CHA) reviewed in MedPage Today (YouTube
Not Ideal for BP), the
authors considered 33% of YouTube videos about hypertension to be “misleading” but
deemed 63% to be more “useful” because they were aligned with recommendations
from the Seventh Joint National Committee of the National Heart, Lung, and
Blood Institute and the American Heart Association
- In a study published in the Journal of the American
Osteopathic Association (JAOA) (Caution
Prescribed When Researching Medical Conditions on Wikipedia), Dr. Robert Hasty and colleagues found that
Wikipedia’s publicly edited medical articles are 90% inaccurate
Both of these studies are more striking when you consider
that 72% of internet users say they look online
for health information. That’s a lot of people looking for information about
hypertension and other chronic illnesses who may be sidetracked by inaccurate
or incomplete information.
The news isn’t all bad.
The JAOA study notes that there is a push on Wikipedia to have statements
backed by references and unverifiable statements being called out to readers.
In addition, in an exploratory study published in Nurse
Education Today (Wikipedia as an evidence source for nursing and
healthcare students) Dr. Carol Haigh evaluated more than 2500 references from more than 50
Wikipedia pages and found they were of “sufficiently sound quality to suggest
that, for health related entries, Wikipedia is appropriate for use by nursing
students.”
Online research guidelines for
patients
So what is a patient to do when exploring thousands of
online resources for treatment options for a chronic illness or disease? Or, where
should someone who is trying to self-diagnose a suspicious rash or lingering
pain start a search? No matter what the reason for turning to the Internet for
information—convenience, immediacy, lack of information from or access to a
healthcare professional—caution seems to be the operative word.
Dr. Hasty and his colleagues from
the Wikipedia study suggest that “caution
should be used when using Wikipedia to answer questions regarding patient
care.” They also recommend that patients
- Consult with their physicians about treatment options and to discuss
questions about prescriptions or over-the-counter medications
- Use multiple medical resources to get different perspectives
- Look for websites with medical advisory boards and peer-reviewed content
Dr. Nilay Kumar with CHA says that
doctors need to do more to help educate their patients, as well. “Given the
fact that so many patients with chronic diseases look at medical information
online, the medical community must take a more proactive approach in prescribing
medical information to patients,” he said.
Helping pharmaceutical companies educate patients
With today’s focus on
patient-centered care and patients searching for and selecting their own health
information resources, the need for accurate, reliable information is
paramount. Pharmaceutical companies play an important role in the process by
providing medical professionals with informative tools to help their patients
make informed decisions about their treatment options.
Artcraft Health produces digital and
print educational solutions for pharmaceutical companies that are grounded in
research from public health organizations, federal agencies, and universities,
such as the American Heart Association, National Institutes of Health, and Harvard
Medical School. We employ targeted, health literacy teaching strategies that reflect
the most current guidelines and are carefully assessed for accuracy.
We understand that
online healthcare resources play an important role in supplementing patients’ educational
needs. Importantly, though, when patients receive clear, actionable, relevant,
and engaging educational tools from their doctor or nurse—such as the
strategies Artcraft Health develops—they are more empowered to make optimal
treatment decisions with their healthcare team and adhere to appropriate
therapies.